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*** Multiple System Atrophy/Shy-Drager Support Group - INTERNATIONAL Support Organization - Home Page
***Our MSA/SDS Email Discussion/Support List*** - Instructions for joining here! - You won't find a better place for information and support than this place. "The electronic mail list is open to patients, caregivers, and others who are interested in the Shy-Drager syndrome. Through use of the electronic "party line", anyone can ask a question, answer a question, post information on medication and treatments, share the good and the bad times, etc.
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National Ataxia Foundation (NAF) -
Support to patients who have symptoms of ataxia (loss of balance and coordination)
National Dysautonomia Research Foundation (NDRF) -
Support to patients with autonomic disorders
National Organization for Rare Disorders (NORD)
National Parkinson Foundation
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USA - Support Groups by State
Please let me know of any local MSA support groups!
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Another MSA Yahoo online support group - Multiple System Atrophy and Rare Neurodegenerative Disorders Support Group, including PSP, LBD, CBGD, SCA, AAN, and other rare neurodegenerative disorders
MSA-Angels -
Online support group for those who've lost a loved one to MSA
Parkinson's Information Exchange Network -
Message boards for both Parkinson's Plus and MSA
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EUROPEAN Support Groups
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Europe - Support Groups:
Adrienne Coles Memorial Trust
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